Scientific Program

«Lifelong course of diseases of the child’s nervous system»

PLENARY SESSIONS

OPENING CEREMONY & AICARDI AWARD

PRE-CONGRESS SYMPOSIUM

Parallell sessions

Early Morning Seminars

Industry symposia

 

Wednesday June 21 to Friday June 23

FROM PARENTS TO THE CHILD: RISKS AND OUTCOME IN CHILDREN

Maternal pathologies

  • Pregnancy in multiple sclerosis: what are the consequences for the child?
  • Metabolic Disorders: Diagnostic and management practices for phenylketonuria in Europe
  • Muscle Disorders: the example of Steinert disease

Toxic exposure

  • Maternal epilepsy and effect of the AEDs on the child’s neurological development
  • Psychiatric disorders and the child’s neurological development
  • Environmental toxics and birth defects

Genetics and environment

  • Outcome of children born by medically assisted procreation
  • Genetic disorders mimicking viral infection
  • Acute Flaccid Paralysis due to Enterovirus D68 – A European collaboration

FROM CHILDHOOD TO ADULTHOOD

What did we learn from large cohort studies?

  • Lysosomal disorders
  • Duchenne Muscular Dystrophy
  • Genetic syndromes with behavioural and cognitive symptomatology: the example of Tuberous Sclerosis

Evolution of treatment concepts and therapeutic novelties

  • Gene therapy in neurometabolic disorders
  • Innovative treatments in neuromuscular disorders
  • Treatment trials in neurodevelopmental disorders: the example of fragile X

 

 

 

 

 

 

Tuesday June 20

 

19:00 – 19:30 OPENING CEREMONY

Welcome from EPNS president Lieven Lagae (Belgium)

Welcome from SFNP local organizing committee Vincent des Portes (France)

Welcome from the City of Lyon

M. Alain Galliano
Vice President in charge of International Relations for the Great Lyon, Mayor of Craponne

19: 30 AICARDI AWARD LECTURE

Chair: Lieven Lagae (Belgium)

1st EPNS Aicardi Award

The EPNS Board is delighted to announce that Professor Alexis Arzimanoglou from the University Hospitals of Lyon, France has been selected as the recipient of the first EPNS Aicardi Award.

The EPNS was deeply saddened about the passing of Professor Jean François Marie Aicardi in 2015. In recognition of our honorary EPNS member we have introduced the Aicardi Award.

The award is given to Professor Arzimanoglou in appreciation of his exemplary contribution to the field of Paediatric Neurology.

 

20:30 – 22:30 WELCOME RECEPTION «CUISINE LYONNAISE»

 

 

 

 

Monday, June 19 and Tuesday, June 20

 

Pre-Congress Symposium (additional fee)

 

2nd European Paediatric Neurology Society International Satellite Symposium
on Advances in Neuromodulation in children: Neuronal Networks, Neurophysiology and Neuroplasticity

 

download the full program

 

 

 

 

Wednesday, June 21 to Friday, June 23

 

Update on hot topics, followed by original contributions from participants

 

EPILEPSY: MEDICAL & SURGICAL TREATMENT ISSUES, CO-MORBIDITIES, GLOBAL CARE

  • Psychiatric comorbidities in children with epilepsy: do they differ from adults?
  • Epilepsy surgery: Should we wait for children to become adults?
  • Evidence-based trials in childhood epilepsies, should they differ from those performed in adults?
  • Epileptic seizures and metabolic screening: when, which and for whom?

INHERITED METABOLIC DISEASES

  • Synaptic metabolism: a new approach to neurometabolic diseases
  • Cell replacement therapies for Pediatric Leukoencephalopathic disorders
  • Brain Iron Accumulation

CNS INFLAMMATORY DISEASES

  • Autoantibodies
  • Cognition and inflammatory diseases of the brain
    – Duchenne Muscular Dystrophy
    – Genetic syndromes with behavioural and cognitive symptomatology: the example of Tuberous Sclerosis
  • Evaluation of new and existing therapeutics for pediatric multiple sclerosis

NEUROMUSCULAR PATHOLOGIES

  • Spinal Muscular Atrophy

NEURO-ONCOLOGY

  • New drugs in neuro-oncology and long-term outcome

NEURODEVELOPMENTAL DISORDERS

  • Rare Copy-Number variations and neuropsychiatric development disorders
  • How does human cognition develop? Brain imaging studies in the first months of life

VASCULAR DISORDERS

  • Optimal treatment of AV malformations

NEUROREHABILITATION

An EACD-EPNS joint session: Evaluation of neurorehabilitation methods

FŒTAL and NEONATAL NEUROLOGY

  • Neuroimaging findings as an outcome predictor

TREATMENT OF MOVEMENT DISORDERS

  • Can we use the same treatments in adults and children?

 

 

 

 

 

 

  • Migraine as a life-span disorder
  • Clinical expression of movement disorders & epileptic seizures: Same neuronal networks?
  • Neonatal EEG: Guidelines revised
  • Screening for metabolic disorders in a child neurology department
  • Treating anxiety and/or depression in children
  • Genetics Techniques: What you think your neighbour knows in the field of genetics?
  • Diagnosing and treating narcolepsy in children
  • Semiology of movement disorders: Comparing children & adult patients
  • Genetic screening for epileptic encephalopathies in 2017
  • What to ask and how to read the MRI of a child with focal epilepsy?

 

 

 

 

 

 

Wednesday, June 21

  • Shire: Prolonged seizures: How can we achieve optimal management of high-risk patients?
  • Biogen: Evolving the Standard of Care in Spinal Muscular Atrophy
  • Sanofi-Genzyme: Tales of the Unexpected: bringing an early diagnosis to light in childhood muscular disorders
  • PTC: Translating clinical research into clinical practice in the field of Duchenne muscular dystrophy

 

Thursday, June 22
  • Biocodex: Long-term medical and psychosocial outcomes in Dravet syndrome
  • Livanova: VNS Therapy for Epileptic Encephalopaties
  • Biomarin: Identification, Early diagnosis and Evolution in the Management of CLN2
  • Sarepta: The importance of genetic testing and interpretation in the new era of mutation specific treatments for Duchenne muscular dystrophy

 

Friday, June 23
Breakfast symposium
  • GW Pharmaceuticals: Early-onset epilepsies
  • Ultragenyx: Overview of Movement Disorders in Glucose Transporter Type-1 Deficiency Syndrome

 

Lunch symposia

  • Eisai: Focal seizures and epilepsies: a challenging transition from childhood to adulthood
  • Santhera: Focus on Addressing Respiratory Function Decline in Duchenne Muscular Dystrophy
  • Zogenix: Dravet Syndrome – Emerging Insights
  • Novartis: New Insights Into Management of Tuberous Sclerosis Complex-Associated Seizures

 

 

 

 

 

 

 

 

 

 

 

PRELIMINARY SCIENTIFIC PROGRAM

(updated April 4, 2017)

download

SFNP Executive Board
Sylvie NGUYEN, President, University Hospitals of Angers
Stéphane AUVIN, General Secretary, University Denis Diderot (Paris)

Sylviane PEUDENIER, Treasurer, University Hospitals of Brest
Chairs Local Organizing Committee
Alexis ARZIMANOGLOU, Head of the Clinical Epileptology, Sleep Disorders and Functional Neurology in Children Department
Vincent DES PORTES, Head of the Paediatric Neurology Department

Hôpital Femme Mère Enfant (HFME), University Hospitals of Lyon
EPNS deputies
Patrick Berquin, University Hospitals of Amiens
Brigitte Chabrol, University Hospitals of Marseille
Local Scientific Committee:
Epilepsy disorders
Alexis Arzimanoglou, University Hospitals of Lyon
Inherited metabolic diseases :
Brigitte Chabrol, University Hospitals of Marseille
Multiple Sclerosis and related CNS inflammatory diseases
Marc Tardieu, Le Kremin-Bicêtre Hospital, University of Paris XI
Kumaran Deiva, Le Kremin-Bicêtre Hospital, University of Paris XI

Neuromuscular pathologies
Isabelle Desguerre, Necker-Enfants Malades, University of Paris V (René Descartes)
Neurodevelopmental disorders
Vincent des Portes, University Hospitals of Lyon

Local Organizing Committee:

Maryline Carneiro
Aurore Curie
Julitta De Bellescize
Patricia Franco
Anne Guignard-Perret
Julien Jung
Pascale Keo Kosal
Laurence Lyon-Francois
Véronique Manel
Clara Milleret
Alexandra Montavont
Karine Ostrowsky-Coste
Eleni Panagiotakaki
Anne-Lise Poulat
Aude Raoux
Christelle Rougeot-Jung
Christophe Rousselle
Isabelle Sabatier
Dorothée Ville

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